How to do a CD4 Count

Still here. Here, still.

Sorry that this blog's been offline for a little while; I was trying to work out some better ways of keeping it anonymous, which hasn't worked brilliantly so far, but I've now got it working from a new email address that's specifically for this blog, so I'm feeling a little more able to talk here again.

I'm glad that I've got that sorted out, although I'm sure that my identity is the worst kept secret in the world, as is my status. It comes through in so many subtle little things, and I'm generally open about it, just not to people I work with, for the main part, and not with people I think will be stupid about it.

I got my latest blood test results through. My cd4 count is 351 and my viral load is 3,150 or something like that. While it's obviously heartening that the viral load is coming down, the wave of anxiety I felt while waiting for the results broke onto the shores of, well, sadness when the results came through. My numbers have been all over the place, to the extent that I've run sweepstakes on what my scores will be, but I've got to accept that they're unlikely to get better and I have to resign myself that while I'm not on medication, I do have a progressive and life-threatening condition. Of course, medication changes that and makes it manageable, but there's still a sense of bereavement for a chapter of my life that has passed and can never quite be regained.

I still struggle with the dilemma about how open I should be about my status - I mean, I shouldn't feel like it's something I have to hide from people, but I still feel that it's a failure on my part that I got infected. I mean, we all know how to avoid it, don't we? I still don't know how I caught it, who I got it from or much like that - there's a few times when I took moderate risks, but I didn't do any of the high risk stuff you're always warned about, so there's, I guess, a sense of anger as well as the sadness about this whole thing. A desire to make sense of stuff that never will.

My boyfriend continues to be amazing about all of this and is hugely supportive and sensitive about my status, saying that if he gets infected, then we've got to remember that it's a shared responsibility. Intellectually, I know this, but it would have passed from me to him, so I'd blame myself, not necessarily for the act that infected him but for the fact I got infected in the first place and therefore bring an extra complication to a relationship.

Drawing In

Got a letter through today, telling me I should make an appointment for a flu/pneumonia jab because I'm on the list of people who need that kind of thing. That's nice to know - apparently I'm frail. I won't complain, though - the thought of a winter without the flu is a nice one and not to be sniffed at (sorry). Still, I think it kinda highlights how the GP and the specialists give me totally different takes on HIV. The GP gives me antibiotics every time I go, "just in case" even when it's obvious that it's just something that everyone's getting and thinks I need a flu jab because my immune system is compromised.

It's not; not yet, at least. I've got a CD4 count of 444 and a viral load of 22,691 - according to received wisdom, it's unlikely I'll have an immune system that's compromised for another five to ten years. I don't have a co-infection of hepatitis or anything else. When the GP's so twitchy about my HIV status, it makes me wonder what it must feel like to be someone who doesn't have good specialist care at their disposal and is only given that concerned look every time they go to complain about a bad back or anything.

It's funny - I'm also being encouraged to apply for a grant that I am only entitled to ask for if I'm prepared to say that I'm disabled, which I think the DDA says I am, kinda, now. Doesn't make it terribly comfortable, though, to be ticking a box and wondering what questions they'll ask and what they'll do with that information. It's funny, before, when I was ill with PTSD and had a psychiatric diagnosis and was on medication and the like, I was quite happy to be disabled, but this, which is clearly not my fault, I'm ashamed of.

I wonder if there's still some issues to work through about the whole thing. I'm sure I can understand how people wind up saying things like that they're Poz and Proud and all that, but I don't want that, nor do I want people's sympathy when I say I'm positive. There is still that odd dissonance about the distinction between the friends who know and the friends who don't know. Sometimes it's just not come up in conversation, so it's tricky, thinking that they might feel left out by not knowing.

The headfuck of HIV is more of a disability than having fewer white blood cells of a particular variety than I used to.

The End of the World, Two Years On

It's been two years since I was diagnosed and I'm not really sure how much longer than that since I got infected. As before, there's not an awful lot to say, which is why this blog's been quiet. After the 300 moment, my counts went back up to 500 and I've just given bloods to get an email in a couple of weeks with where it's all at now. I'm not really sure how much more there is to say about any of it at this point. After diagnosis, I was caught up in the vortex of the breakdown of the relationship I was in and the descent of my then-partner into dark places where I couldn't bear to follow him, then the struggle to come to terms with the infection and the break-up. After that, there was the strange joy of dating someone negative who was utterly freaked out by my status, which left me feeling more diseased than ever. Now, two years on from the end of the world and I'm in a solid, happy relationship with someone who isn't freaked out by my status (and isn't bugchasing either) and a trip to the clinic feels like a trip to the hairdresser's, where it's chats about work, holidays, boyfriends and a quick jab and you're out of there. I'm not sure why there was a point where I thought I was going to need a psychiatrist to help me come to terms with that.

While I was at the clinic last week, I talked to the nurse about how the messages given to my boyfriend about HIV differed so much from the ones I get. He laughed and told me that he thinks it's a bit mental that a doctor told him off for telling a negative client that it wasn't the end of the world if he was diagnosed with HIV.

"Young people don't realise how bad it used to be!" said the doctor.

"Why should they? It isn't that bad any more." said the nurse.

Having grown up in the shadow of THAT tombstone, I can agree. It really isn't all that bad. It's horrible that it's something I have no choice about and it's horrible that it's hassle and some people are horrible about it, but the thing itself? It ain't so bad.

316

Went for bloods last month and, well, I've only got a few more little soldiers than Leonidas had. Soon, it seems, my viral load shall blot out the sun and we shall fight in the shade. Got to repeat the blood test soon but sounds like those years I thought I had left before I'd have to start on medication are fewer than I'd hoped in number.